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Final day at mayo

Chronic Pain | Last Active: Feb 8, 2018 | Replies (28)

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@gailb

@cdcc , I was on Gabapentin, which is the medication from which the maker developed Lyrica when Gabapentin was made generic. I was taking 600mg of Gabapentin 2x a day, and the pain doctor increased my dose to 900 mg 3x a day. The first day on the increased dose, I had a minor car accident as I became distracted. I suddenly couldn't tell where I was and when pulling into a strip mall, I ran headon into another car. Fortunately, I was going only about 10 miles an hour. I was very disoriented and felt like I was high. My husband picked me up and I decided right then that I was not taking Gabapentin anymore.

I talked to my pain doctor about getting off Gabapentin and Baclofen, both of which were prescribed along with Tramadol 50mg for my back pain after surgery. He questioned why I wanted to stop and seemed upset with me about it. He told me to just "stop" taking the Gabapentin, and when I said I had read that I could have withdrawal symptoms from going cold turkey, he laughed and said it wasn't an opiod so I couldn't possibly have "withdrawal" symptoms. I was shocked by his attitude. I then asked my pharmacist how to withdraw from it, and he was very helpful. I took 2 pills every other day, and 1 pill everyday for 4 weeks. Then I dropped down to 1 pill everyday for 2 weeks and 1 pill every other day for another 2 weeks. I think I was ok at that point, although I did have some anxiety for a week. What I discovered after coming off Gabapentin was that I had lost huge amounts of memories, even about a Christmas gift I had been given. I found the card with my registration information for a wonderful art museum membership my friend had bought me. I just had to register for my card. I have absolutely NO memory of receiving the gift, although my husband tells me I was excited at the time. I will NEVER take any medication like this for any reason ever again. Stopping Baclofen was not a problem for me.

I'm also still withdrawing from the Tramadol which has been much more difficult for me as I've been taking it much longer. I have experienced anxiety, panic attacks, and muscle tension that slowed down my withdrawal pace. Ive been working on cutting from 4 pills every 24 hours, down to 3, then 2 a day. It's taken me a couple of months, and I have had depression as well. I was thinking how sad I was that my Citalopram 40 mg/day was no longer working because it has changed my life. So, I slowed down my withdrawal. I'm still taking 1/2 a pill 2 times a day when I start feeling the tension in my muscles happening. I will go to 1/2 pill here in the next week and then nothing after 1 week. It has been incredibly hard. I purchased some CBD Living Water to help during the worst of the withdrawal, and it did help my anxiety. I'm no longer using the CBD. I'm happy to say my depression has gone away and I'm feeling good about that.

It's amazing how profoundly medication can affect us. I found that my pain decreased after stopping the Gabapentin! I am also getting ART treatments from mh chiropractor too. The Active Release Technique has helped me more than anything else I have done. I am about as pain free as I think I can be and still be alive, LOL. I have some pain, but it's tolerable, much more tolerable than the medications. I can't wait to see my pain doctor to tell him I'm drug free.

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Replies to "@cdcc , I was on Gabapentin, which is the medication from which the maker developed Lyrica..."

Oh my goodness, @gailb. I’m on gabapentin since October, prescribed at only 300mg 3x a day. It does make me feel kind of horrible at times, and I can barely make it up to that 3rd dose mid-day. I don’t think it’s helping my fibromyalgia pain or any other, tbh.

I can’t believe your doctor saying that!! It’s well-known that Gabapentin and others like it cause that, as well as many antidepressants (like when I ran out of Effexor on a trip, horrors). I can completely imagine memory issues or an accident. So glad you’re feeling better.

~Lynne

@lynneb2110

Just my opinion, but I would inquire about alternative medicine for your fibromialga. I don't think Gabapentin or Lyrica are good medications. Please keep in mind that I'm not a medical professional, and my opinion is based on my experiences with Gabapentin. Follow your doctor's recommendations, but if you are struggling with it, ask for an alternative to neurontin type meds. Gail B

The Dr.had me on gabapentin I had dry mouth @throat I thought I was going to choke to death @it didn't help me Look for alternatives there has to be something there that will help Good luck.

Since I've had this probably much longer then anyone 30yrs I tried so many meds hi have ,but there are so many side effects I finally stared to do research on my own .Fibro Malic from Amazon or Vitacost has helped me more then any other meds ,tens treatment for tight muscles,chiropractor ,ice or heat ,Epsom salts ,herbal medicine for anxiety St John Wort or Sam-e. Just my advice as to what works for me.Since the Fibro Malic which has alot of magnesium in it I tend to think we fibro people need more minerals then our body @food give us.

Among other issues, I have had Firbo for about 40 years. I've tried everything!
These are the things that worked for me:
1. Lost weight
2. Exercise daily. I started with just walking. My husband would have to pull or push me.
3. Chiropractor
4. Theraputic massage
5. I took 10 mg of Amitriptalin (spelling?). I avoided this for a long time but I was desperate. Within a week of getting into the most needed DEEP SLEEP, I was 90% better.
Although I no longer have symptoms, I am sure it still exists to some degree. How do I know this? If you touch those trigger points, I might punch the person.

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