@ella2000 I do not feel qualfied to comment on your pain experience except I have been suffering for 15 years with a burning in mouth- tongue- lips and more in that area. Medical profession admit it is real but they do not know how to treat it, i am at the stage of not remembering what I have tried as I go from one Dr to the next. I have been going to a big hospital pain clinic for years-- went 2 days ago and am trying another drug Lyrica-- I can't remember if I have had it before but-- like you it is walk away time.
I am leaving my body to science-- having had 2 rounds of surgery and chemo (not connected) and am in remission. there was a post on the wall , it read don't listen in to your pain listen out--- can you do that? I am going to try. I am 77 year old female wish you well and talk to me if you want. Noeline