Dear Barbara,
It's been a couple of years since you posted and I wonder how you are doing now. In mid-May 2020 I lost sight in my right eye overnight and thank God, was immediately diagnosed with Giant Cell Arteritis. I was urgently put on 60 mg prednisone, now tapered down to 20 mg with another month down to 10 mg on which I will have to take for the rest of my life in order to save the other eye. Am looking forward to getting back to normal. I hope I don't have to take this high dose again. l've gained 6kg, some of it water but mostly fat. I realize I will have to deal with mild side-effects of prednisone but I am ready to make that sacrifice.
PMR is a companion to GCA and I think I may have had it for 10 or more years, un-diagnosed.
I'm writing because I am concerned about what you said about Tramadol. I took it for the body pain of what I now think is PMR for 2 years and gradually got worse and worse. When I finally realized I might be addicted, I decided I had to come off of it, suffered greatly for 2 or 3 weeks but now feel much better. My legs seem to work much better without it. I hope you can report the same thing.
All the best,
Jeanne
@jfarreast Sorry to hear you lost sight in your right eye but glad you are doing well now. Did you ever recover any sight in the right eye? Kind Regards, David