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Replies to "Knowing that some patients never go into remission is not a comforting thought, but it is..."
Polymyalgia Rheumatica (PMR) | Last Active: Nov 1, 2021 | Replies (219)
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Knowing that some patients never go into remission is not a comforting thought, but it is a fact.
Remaining active is a key component in treatment of this disease. My challenge has been to determine the level of activity my body will allow. Too much activity seems to trigger the PMR pain for a few days.
Accepting the fatigue component of PMR is a great challenge for me as well.
Accepting that my body will never return to its pre-PMR state has been difficult, but I am getting there.
Replies to "Knowing that some patients never go into remission is not a comforting thought, but it is..."
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@rachelp I so agree with your statements about fatigue and body not returning to its previous state. I used to be so active and volunteered for everything and now I just try to do what I can. I have an autoimmune disease, not PMR, but the end result is all the same: fatigue, being on prednisone, and not just doing what you want to do. But! Enough whining for me! I have to think and be positive! What do you find that helps you stay positive? Becky