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PMR Anyone?

Polymyalgia Rheumatica (PMR) | Last Active: Nov 1, 2021 | Replies (219)

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@lindapc

Hi all, well Im back again to ask some advice. I had reduced my dosage down to 1mg and was feeling okay, then I had what I thought was a relapse but after upping my meds it mad no difference and the pain was different, I think you said John that you thought it may be something else and yes it was. I had a trapped nerve and had to wait for it to heal. Thats when I decided to drop the 1mg to see how I would go, I have been off the prednisone for nearly a week now and my whole body aches like having the flu, I am also very stiff if I sit too long and getting going is a bit of a task, I am really tired most of the time with very little energy. Is this my PMR or withdrawals from the meds. I could really do with some guidance.

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Replies to "Hi all, well Im back again to ask some advice. I had reduced my dosage down..."

Hello @lindapc — I have no medical training or background but my experience with PMR is that if it’s still active and you stop the prednisone the pain will probably return.

Ache is a good way I would describe the pain I have when my PMR was active. I’m guessing a pinched nerve would cause pain in a specific area whereas PMR is mor likely all over the body/joints.

It’s not uncommon to have multiple conditions so it might be good to try upping the prednisone again a little to see if the pain/aches get better. Are you able to discuss your symptoms with your rheumatologist?

Sorry to hear your pain came back — hoping you can find the answer soon.