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PMR Anyone?

Polymyalgia Rheumatica (PMR) | Last Active: Nov 1, 2021 | Replies (219)

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@rolandhp

Hi Pauletta I to have had PMR going on 4 years now I started on 20 mg of prednisone & have worked myself down to 2.5 mg/day & on occasions depending on the weather conditions & have to pop a 5 mg. I also have heard that some patients never go into remission not to encouraging I must say. The secrete is keep active I myself do a lot of gym work I also am a cyclist & in the winter months I down hill ski I also enjoy my motorcycle. My blood work up is good but still have pain in my fingers but not the thumbs strange also pain in my wrist my shoulders & neck. Oh I am also 78 & refuse to give up staying active is the secret we must work through our ailments. Roland

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Replies to "Hi Pauletta I to have had PMR going on 4 years now I started on 20..."

Knowing that some patients never go into remission is not a comforting thought, but it is a fact.

Remaining active is a key component in treatment of this disease. My challenge has been to determine the level of activity my body will allow. Too much activity seems to trigger the PMR pain for a few days.

Accepting the fatigue component of PMR is a great challenge for me as well.

Accepting that my body will never return to its pre-PMR state has been difficult, but I am getting there.