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PMR Anyone?

Polymyalgia Rheumatica (PMR) | Last Active: Nov 1, 2021 | Replies (219)

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@susieflamilngo

Thank you for reply. I started at 20 ml predinone and slowly
Tapered for a year to 3 mg.
I did not have a formal schedule
And maybe that was part of my headache problem. I remember going down very slowly. My
A1-C and Sed are now normal and I hav never had the terrible pain of many in this group. I just wonder if the two drugs
Mentioned above are overkill for present condition.? They both have potential bad side affects.
Leflunomide OR Methotrexate are the strong drugs being considered by my arthritis md to
Gradually taper from the prednisone currently at 6 mg.

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Replies to "Thank you for reply. I started at 20 ml predinone and slowly Tapered for a year..."

Hi @susieflamilngo -- Have you discussed the use of Leflunomide and Methotrexate along with prednisone with your doctor or rheumatologist? I have only used prednisone for my PMR. I would also ask them if they have a tapering schedule that they can recommend. Since we are all different in the way the the PMR affects us I don't think any tapering schedule is something that is cast in stone. I think you have to work with your doctor to find something that works for you. The first time around when I was on prednisone for 3 years, the last 6 months was spent going back and forth between 1 mg and 1/2 mg dosage. At first I was tapering down on a weekly basis and then tried on an every 3 days basis. The main thing I would do is keep a calendar/log of the dosage and a number on the pain scale of how you feel when you change the dosage.

John