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Replies to "Hi @susieflamilngo I wanted to join @johnbishop in welcoming you to Connect. You may have noticed..."
Polymyalgia Rheumatica (PMR) | Last Active: Nov 1, 2021 | Replies (219)
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Hi @susieflamilngo I wanted to join @johnbishop in welcoming you to Connect. You may have noticed I moved your post to the discussion John mentioned so that you can meet others with PMR. Simply click VIEW AND REPLY in your email notification to get to your post.
That must be frustrating to have such an awful side effect. I wanted to tag fellow Connect members @becsbuddy @beryl and @rachelp as they have experience with PMR and may be able to offer you support.
Back to you @susieflamilngo I wanted to repeat John's question. What tapering schedule have you tried?
Replies to "Hi @susieflamilngo I wanted to join @johnbishop in welcoming you to Connect. You may have noticed..."
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Thank you for reply. I started at 20 ml predinone and slowly
Tapered for a year to 3 mg.
I did not have a formal schedule
And maybe that was part of my headache problem. I remember going down very slowly. My
A1-C and Sed are now normal and I hav never had the terrible pain of many in this group. I just wonder if the two drugs
Mentioned above are overkill for present condition.? They both have potential bad side affects.
Leflunomide OR Methotrexate are the strong drugs being considered by my arthritis md to
Gradually taper from the prednisone currently at 6 mg.