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I am new to this group ! I have been looking for
other PMR suffers for a long time. On Prednisone for one and half years. Last year I managed to taper to 3mg but suddenly came down with a terrible frontal headache for several weeks. Luckily I had the required eye exam and was ok. Went back to 20mg but quickly tapered to 7mg where I am stuck. My labs are now normal and have been for some time. When I try to taper more, I just feel so tired, no pain. My arthritis md wanted me to go on Leflunomide from the beginning of treatment and I finally tried it recently just for a few days and had horrible diarrhea. She wants me to try again at 1/2 dose but the above problem ? Has anyone here had experience with this drug? Have never tried Methotrexate but do not drink.
Any help appreciated!!
Replies to "I am new to this group ! I have been looking for other PMR suffers for..."
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Hello @susieflamilngo, welcome to Connect. I have had two occurrences of PMR but it is currently in remission. There is another discussion where your post will receive more visibility. I'm tagging our moderator @ethanmcconkey to see if we should move your post to the following discussion where I'm sure other members with PMR may be able to share their experience with leflunomide and methotrexate,
> Groups > Autoimmune Diseases > PMR Anyone?
-- https://connect.mayoclinic.org/discussion/pmr-anyone/
You mentioned you are stuck at 7 mg prednisone dosage. Can I ask what tapering schedules you've tried? I know we are all different but what has helped me get off prednisone was slow and easy tapering. The first occurrence of PMR took me 3 years to taper off. The last six months was going between 1 mg and 1/2 mg dosage until I was finally able to stop taking it. The second occurrence was much easier for me. It only took 1-1/5 years to taper off.
John