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PMR Anyone?

Polymyalgia Rheumatica (PMR) | Last Active: Nov 1, 2021 | Replies (219)

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@rolandhp

Hi John yes tapering off the pred. is tricky as you know. It all depends on a couple of factors, how much discomfort you can stand will determine on how much prednisone you need. no 2 bodies are alike & where do you stand of the 1-10 pain threshold. As I had stated before plenty of exercise & a good diet helps. After almost 2 years dealing with PMR I am stuck on 5mg/daily tried to go lower only to find myself going back to 5mg. Strange disease but life goes on & yes thanks to the pred.

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Replies to "Hi John yes tapering off the pred. is tricky as you know. It all depends on..."

My name is Beryl ....having had PMR for many years and being on three mg of ped for around two years and I am to keep it at that ....only going up if need be ....doctors orders.....
I have always got pain and have been able to ignore it, during the day at night I can't as it stops me sleeping and will get worse if I didn't take something for it ......I have to take one Norco table when I go to bed , this sometimes sees me through the night at other times it won't and I have to take another half ....it's all ups and downs ......there has been time when I have been perfectly fine at bedtime and I must say then I don't even think about taking anything but this is rare at the moment as I am away in Sicily for the winter and the weather is cold .....yes they are having a bad winter and I am sure cold adds to your pain to....
Just hope when I get back home things get better ......I hope also you can find a common denominator as this seems to be hard to achieve ......best of luck Beryl