Connect
Comment receiving replies
I have had a "wake-up call" As my daughter has said, "you cannot always will pain away." Shortly after diagnosis of PMR, I thought, " I am mentally and physically strong so I can start getting off prednisone all by myself" ( My doctor is very hard to contact.) So I have been rapidly lowering dose until not taking it at all. This last week, I have been almost comatose with pain and stiffness once again. I have learnt my lesson. Yesterday I started back on 5mg in the morning, think I might do better to split that between morning and evening. I will see my physician in about 10 days, when I plan to have a long discussion with him on laying out future behavior. I do dislike prednisone very much as it affects my vision, but can actually function quite well when taking it.
Replies to "I have had a "wake-up call" As my daughter has said, "you cannot always will pain..."
Connect
Tapering off can be a struggle. The first occurrence of PMR I also tried to taper off as quickly as possible and it came back to bite me with a vengeance. The first time around I went back and forth between 1 mg and 1/2 mg tablet for about six months until I finally was able to stop taking prednisone with little or no pain. I tried to make my taper schedule weekly and kept a log with a pain scale which is kind of subjective but gave me a reference. Hoping your PMR goes back into hiding.