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PMR Anyone?

Polymyalgia Rheumatica (PMR) | Last Active: Nov 1, 2021 | Replies (219)

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@msvl1998

You can only treat the symptoms for autoimmune disorders and rather than calling prednisone the devil I would prefer to call it a saint. It literally makes the symptoms go away for a while. I know of no other pill, diet or exersize that will do that. Drs shy away from addressing the causes because the answer is blowing in the wind. To many possibilities with no absolutes and drs hate to be wrong. Each individuals body attacks and responds in its own unique way and only you can figure out the triggers. With my PMR I cannot get out of bed or walk for 2 days once a month. It’s like clockwork and I’m still clueless about the cause. If I didn’t have the prednisone it would last days longer. There is no fruit or yoga stretch that’s going to fix it and doctors, including rheumatologist, won’t admit it but they can’t help. They can charge but they can’t help. It’s totally up to you to identify the triggers and dial in a fix but don’t throw away the prednisone

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Replies to "You can only treat the symptoms for autoimmune disorders and rather than calling prednisone the devil..."

Hi @msvl1998, welcome to Mayo Clinic Connect. Far be it for me to call prednisone the devil. When my PMR was active, prednisone was the magic "make it go away" pill. Weight gain was the only side effect I had and after the first occurrence I was ready when it came out of remission the second time so I was able to stay on top of the weight gain issue.

When my PMR was active, mild exercise was essential in staying flexible and being able to move. Even today with the PMR in remission I have to move around some so my joints don't stiffen up. I find riding my recumbent exercise bike really helps me keep the joints flexible. My thoughts are that the prednisone and exercise go together to help treat the condition.

Arthritis Foundation has some information you are probably already familiar with on PMR:
-- https://www.arthritis.org/about-arthritis/types/polymyalgia-rheumatica/

It sounds like your PMR is still active. Are you trying to taper off of prednisone?