← Return to PMR Anyone?

Discussion

PMR Anyone?

Polymyalgia Rheumatica (PMR) | Last Active: Nov 1, 2021 | Replies (219)

Comment receiving replies
@reagan1mc

Frankly, I do not think they know what causes the immune system to attack itself or what any one person has ie; lupus, PMR, Mixed Connective Tissue disease, etc.... My girlfriend who has been a MD for over 35 years ( An OBG/YN) who delivered over 3,000 babies now a Gynecologist and General Medicine practitioner and now a Bio-Identical Hormone replacement Doctor... and I have discussed this subject at length over many days and weeks.... we are both of the opinion that this monster we are dealing with, is an unknown, except for the fact that a somewhat dangerous use of steroids work.... on putting this back in the box.... so to speak.... I have a feeling that if we can hang on with symptoms kept to a minimal, that a cure is on its way....

My question still is;;; did going on an (aggressive- High Dosage of Prednisone = 80mg for 4 days then down 10 mg every 4 days until I am at 10mg now and will keep it at this or lower..... reverse the symptoms (Not being able to stand on my own power) until the 4th day and I was able to regain all my body to stand/dress/shower and all the functions I had lost....or would I have been stuck there, not being able to regain the use of my 'Core muscles' "Your core is a complex series of muscles, extending far beyond your abs, including everything besides your arms and legs. It is incorporated in almost every movement of the human body" Or would It have been stuck/ literally and figuratively/ at that state?????

Jump to this post


Replies to "Frankly, I do not think they know what causes the immune system to attack itself or..."

Yes Prednisone can be a very dangerous drug but what is the alternative to the PMR non as far as I can see. I could not imagine 80 mg/day I started on 20 & started weaning myself off of it as soon as I could. Now a little discomfort still exist but I am holding my own & down to 7.5 mg/day. On having this PMR my physician thinks the patient does know best on when to cut back the dosage. It must be done very slowly like 1 or 2 mg/month, so far for me that has worked but then only time will tell.

Yes, I started at 15 mg. and have gradually weaned down to 1 mg. My pain is returning ... as much as I don't want to go back on prednisone, my RA doctor suggested we try 5 mg and just see if that will keep my pain at a level wherein I can get back to swimming, etc. Sounds like your doc is a reasonable person.