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My Dr. said that only the patient know how one feels especially suffering with PMR not all acts the same way being treated with Prednisone. I started on 20 mg/day last March & I have weaned down to 7.5 mg/day. I am taking it slowly as I do not want the PMR to flare up & then I would have to start all over again with a higher dose of pred. I know it is difficult but plenty of exercise us one of the recommendations even if you are in pain you must exercise those aching joints. I try to be at the gym 4 time per week & it has helped, and I do not take any extra supplements except for my multi vitamin twice a day. As far as one persons age well I am 76 & will get over this PMR stuff I am persistence. Good luck & keep moving & don't push the weaning off the pred. take it slowly.
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Yes a very strange disease this PMR & really no-one has the answer to where it comes from why some people get it & then no cure. Sure glad for prednisone because without it well yes the pain is really bad. Now no-one is an expert but I did notice the people that are very active tend to get it why well we will let the experts figure that one out. I had said that I am on 7.5 mg/day. I take 2.5 in the AM & 5 in the PM & for me it works. Yesterday I was able to play a round of golf with no problem what so ever. Next week will do some down hill skiing that is if the predicted storm arrives. Otherwise it will be the gym. Stay active
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Hi Rolandhp for sharing your experience. I agree with everything you said - I will be 70, too, and am persistent. None of us want to be on Mr. Nasty - I guess sometimes it comes down to being able to enjoy a good quality of life through drugs, or hobbling along. I am an exercise advocate and never miss a day of swimming, yoga, walking, etc. However, I got to the point I couldn't even dog-paddle !!! That's when I made the decision to go on prednisone. I was diagnosed a year ago, started on 15 mg. and have been gradually weaned off down to 1 mg. Now the pain is slowly returning. My RA has me on meloxicam to see if my pain is possibly due to arthritis/tendonitis. It's a crazy disease (I have never been a sickly person). Have trouble walking in the morning now. Hip flexors aren't working until after I force through the pain of stretching out. Good luck to you. Maybe I'll look at 5 mg. of pred. ?