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PMR Anyone?

Polymyalgia Rheumatica (PMR) | Last Active: Nov 1, 2021 | Replies (219)

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@johnbishop

Hello @olegraymare -- welcome to Mayo Connect. We are glad you found us. Connect is a great place to ask questions and learn what others with similar health concerns are doing for treatments. I also have polymyalgia rheumatica (PMR). As my rheumatologist explained it to me PMR is like arthritis all over the body. My first episode of PMR was in 2007 and I was started on 20 mg prednisone. It took me 3 years to taper off of prednisone and the PMR went into remission and stayed gone for 6 years, It came back in 2016 and again I was started on 20 mg of prednisone. I'm now controlling it with 2 mg dosage and hoping to be off of the nasty stuff in a month or so but there are no promises. The one thing I can tell you is we are all different so you just need to take it one day at a time and keep moving but not over doing it.

You have asked the $64,000 question - what is causing the inflammation? Unfortunately I think the answer is the disease itself, but I'm no doctor and have no medical training. Mayo Clinic has a good overview of PMR here:
https://www.mayoclinic.org/diseases-conditions/polymyalgia-rheumatica/symptoms-causes/syc-20376539

I'm tagging other members who have discussed PMR and prednisone (Mr. Nasty) to see if they can offer you any suggestions or more information. @rolandhp, @barbararene, @mach92, @alanbruce can you offer any suggestions or information for @olegraymare ?

I would also like to mention that I think you are on the right track with nutrition. You might want to check out a book by Dr. Terry Wahls - The Wahls Protocol. She has MS and has a great story about using nutrition for cellular health to reduce or eliminate her MS symptoms. You can read more about her here:
https://terrywahls.com/about/about-terry-wahls/

John

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Replies to "Hello @olegraymare -- welcome to Mayo Connect. We are glad you found us. Connect is a..."

Thank you so much. I wrote you a private response earlier ... wasn't sure how to proceed with the Connect protocol.

Good Morning John,
Something I have noticed in the last few days, that I thought might be helpful for some people. The last few nights I have slept exceptionally well, waking up bright and cheery. I've examined behavior of previous days. Each day after my evening dinner I have eaten a piece of dark chocolate that is at least 72% pure. When I looked online found that this can be a sleep aid. Of course it is also very beneficial in many ways including as an antioxidant. I have a LINDT chocolate bar, wafer thin, break of a piece that is about 1" by 2". The bar is 72% pure. This may not be the help I have received in sleeping, but I intend to continue doing it. 🙂

Maggie.