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← Return to Craniopharyngioma surgery
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Brain Tumor | Last Active: Sep 27 10:28am | Replies (36)
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Such great news, Susie! All the best with managing the post-surgical symptoms. Please keep us posted.
@craniodaughter here's the link to the in-person support group in Rochester https://www.brainstogetherforacure.org/find-support/
Thanks for the info, @cads. Do they sometimes have guest speakers or is it usually a time for peers to get together and share.
Replies to "Such great news, Susie! All the best with managing the post-surgical symptoms. Please keep us posted...."
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BTFC is comprised of patients, caregivers and medical advisor. Everyone gathers for welcome, introductions, announcements, then breaks into 2 groups (patients and caregivers). Physician spends time with each group. It’s a nice blend of seasoned patients and those newly diagnosed. From time-to-time a special speaker may be present.