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Craniopharyngioma surgery

Brain Tumor | Last Active: Sep 27 10:28am | Replies (36)

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@susieq8

Hello! Sorry for the delayed response. My surgery went well and they were able to remove more of the tumor than expected. Pathology results came back with a Null Cell Pituitary Adenoma diagnosis vs craniopharyngioma. I’m working on managing post surgery symptoms of headaches, dizziness and fatigue. We do not yet have a treatment plan, but the doctors indicated that it is not necessary to rush into this phase. Hope all is well with the rest of the group.

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Replies to "Hello! Sorry for the delayed response. My surgery went well and they were able to remove..."

Wonderful new! Glad it went well.

Such great news, Susie! All the best with managing the post-surgical symptoms. Please keep us posted.

@craniodaughter here's the link to the in-person support group in Rochester https://www.brainstogetherforacure.org/find-support/
Thanks for the info, @cads. Do they sometimes have guest speakers or is it usually a time for peers to get together and share.