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I just noticed this conversation and while I'm not at all familiar with this disorder I would like to join Colleen in encouraging you to look into music/art therapy. There are some great studies that have been done showing the effectiveness of music and art on cognitive problems and how it helps to create new paths in the brain. Here is a link to a video regarding music and the brain, https://www.facebook.com/ScienceNaturePage/videos/1284891671643088/
As a person with a mild Parkinson's diagnosis, I have been involved with music therapy and have seen the difference for myself and others when music becomes part of my life style. I am also involved with a therapy choir and I have seen very uncommunicative people start communicating as a result of music. It is simple to do, free of charge and can make a difference.
Cognitive therapy is also very helpful. Sometimes doctors will not mention these types of therapies, so you will have to ask specifically for it.
You might consider calling your local university and asking about music/art therapy programs and if they have students who might be willing to offer their support/services. It really does make a difference.
Teresa
Replies to "Hello @rubyjane and @cads I just noticed this conversation and while I'm not at all familiar..."
hi, cads, I failed to ask for assistance with my cognitive issues during the last series of appointments that I had. I was more concerned about my physical health at that time. I read Colleen's suggestion about incorporating music into my life and I intend to do that.
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Teresa, thanks for reminding me that music is important for many of us. As I was thinking about what I wanted to say to you I realized that the amount of music in my life has dropped off a lot since 2000. My daughters are both musicians, not professionally but primarily for their own enjoyment.. Both play violin and piano and one also plays cello. Since both left for college I have lazily allowed music to slip into an unimportant role in my life. Thanks for the reminder to turn the radio back on . rubyJane