Colleen, Today is 4/20 and I rec'd an email telling me what is new on Connect. The information for the craniopharyngioma group said that there were 8 updates. I found only the comments that have been on the site for many weeks. I found no new comments. Am I missing a way to find the new comments? Why would there be a claim that there are new comments when it appears there are none?.

Hi @rubyjane, I think the 8 updates were referring to the Brain Tumor group as a whole and maybe not specifically to the craniopharyngioma discussion group. Apologies for the confusion.

On another note, how are you doing?

Thanks for the note, Colleen.  I think I figured out that the updates were not for the craniopharyngioma group although I was disappointed. Guess the lack of updates should not surprise me. We are a rather rare group.Right now I am doing well.  In August of 2017 I had surgery for breast cancer.  Fortunately we found it early and I got by with a lumpectomy and radiation, no chemo.I have needed some PT to ease the tightness of some of the axillary and chest muscles.  I am able to move with less discomfort now.

Hi @rubyjane! I should apologize for absence on the craniopharyngioma message board. Life has been very hectic!
Sounds likewise for you. Hope things have settled down for you a bit. We’re gearing up for the upcoming Twin Cities Brain Tumor Walk on Sat. June 9th. Several of the first PBT patients/families are coming together. We’re looking forward to a nice 3 Year PBT reunion! You’re welcome to join us if you live near. Team PBT 3 is going to be celebrating!!!!