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Practical questions about nebulizer, shower head filters & gargling
MAC & Bronchiectasis | Last Active: Jul 26, 2018 | Replies (54)Comment receiving replies
@gardenernj Hello, and welcome to Connect. Do you have a first name that I can address you by? I am very glad that you are finding this site helpful. I am sorry about your diagnosis. Myself and others are here to help you navigate your way through it. About brushing teeth with sterilized water..... I do not do it, but others on this site might. I probably would if I had a high colony count and multiple kinds of bacteria infecting me. It would also depend on what KIND of MAC I had. If I had M. Abscessus or MAI, then I might consider sterilizing. I have Avium Mycobacterium, it is a slow grower & I am on monthly doses of alternating antibiotics for life. I am not on the BIG 3, I do 10 days every other month on one that is totally tolerable, and then 28 days on Tobramycin for pseudomonas. Do you want to tell me more about what is going on with you?
Replies to "@gardenernj Hello, and welcome to Connect. Do you have a first name that I can address..."
Kris.....by your posting it sounds like you are a gardener...do you think you picked upMAC in the garden? I too have MAc and believe that’s where I got mine.
I read that potting soil can be a problem. I think that was my source.
@gardenernj Hi Kris. Nice to 'meet' you; wish it were on a gardening site or something instead of MAC. (sigh) Have you been able to navigate this site alrigjt? Please feel free to ask questions, if I don't know the answer; I can try to find it.
@marilyns It's very possible. Did you use potting soil with peat in it?
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@windwalker My name is Kris, thanks for your reply. I am just wrapping my head around being diagnosed with this disease. There is so much to learn plus it is very abrupt to change my entire routine. I started on the Big 3 last week and am looking at 3 years on the meds so I am definitely new to this all. I'm certainly glad to have found this group.