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Has anyone been diagnosed with Abdominal Wall Pain

Chronic Pain | Last Active: Mar 14 12:16am | Replies (282)

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@fireball59

Hi, I have had two trigger point injections, with no success for what I call spasms. Mine is due to gastric lapband damage. I have been to so many doctors with no success. I finally went back to the bariatric doc, and he said it must be nerve damage. So I started researching abdominal pain, and nerve damage. I came upon ACNES, and it fit me to a T. I went to a neurologist thinking they would know about it. He was extremely rude, and treated me like I was crazy, said he never heard of ACNES, and doubted any other neuro knows what it is. So I left angry. I then started to look for a doc who works on pain. Finding a clinic who works with abdominal is hard. But I found Dr. Lynch here in AZ, and he had info on his page about researching ACNES. So I scheduled a appt. I got a trigger point injection... they were calling it myalgia. My second trigger point, was with Dr. Lynch, I brought up Acnes, and he looked at me, in wonder I guess you might say. I wanted to know if they actually diagnosed me with it. He stated that trigger point injections don't work well for that problem. And wanted me to schedule a in office visit with him to discuss it. In the mean time, I had a appt for med renewal, and I mentioned it. She said let me call the doc, Dr Lynch was not available, so she called Doc McJunkin. He said I needed a neuroma percutaneous nerve injection. I am scheduled to have that done tomorrow, and then hopefully a nerve ablation following if it is successful. I was previously told a ablation can not be done on the stomach. It actually is not the stomach per se, it is abdominal, up and to the left of my belly button, where the port for the lapband used to be. Dr. Lynch said it can be difficult, as there are so many nerves, it can be hard to identify which one is causing the pain. Let me tell you, I am very glad I brought it up to Dr. Lynch, because as I say, they were just treating me for myalgia, and no diagnosis for ACNES. Therefore receiving the wrong treatment, for what I think it really is. She asked me if I self diagnosed, and I said Yes , after doing much research, I am positive that this is, what it is. So my injection tomorrow is actually before my consult with Dr Lynch next Monday the 11th. Dr Lynch has done a incredible amount of research on ACNES, and he told me he has had one other patient with this. And there is a different procedure they can do, and that the other patient had great success. I am assuming that it is this other injection, followed by ablation, as Dr. McJunkin is familiar with ACNES as well. So we will see. I have suffered with this pain since 2007, and I am so tired of it. I pray I get some relief. I hope this is not too confusing. Pills have never worked for me. Medical Cannabis in different forms has helped very little. They prescribed me a pain cream, from the Potters House of Apothecary, I use this when I have a spasm, and it does seem to help a little. I hope this helps. Susie

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Replies to "Hi, I have had two trigger point injections, with no success for what I call spasms...."

I suffered terribly with ACNES for about a year. After getting diagnosed via the Carnett test and getting 4 trigger point injections I fortunately found Dr Gillespie at St Joe’s in Phoenix. He performed robotic laparoscopic surgery on T8,9 and 10. Totally cured 😀

Lucky to be in AZ since Dr Gillespie at St Joseph's Medical Center in Phx performs robotic laparoscopic surgery for ACNES. He cut my T8, T9 and T10 and I went home cured of ACNES. He's an incredible surgeon!