← Return to Has anyone been diagnosed with Abdominal Wall Pain

Discussion

Has anyone been diagnosed with Abdominal Wall Pain

Chronic Pain | Last Active: Mar 14 12:16am | Replies (282)

Comment receiving replies
@rt061069

@sawah3 I have chronic abdominal wall pain at a level 8 and 18 hrs per day. Have had the same pain over two years now and was avg level 7 last year. Like your daughter and more I have had the MRI, CT Scans, blood work, gall bladder tested, bladder checked and had many different injections. My pain is now pelvis to xiphoid. Hurts to walk, driver over bumps, do steps etc because of the ab wall moving. Mine is 8 inches wide or so down the middle. When I wake up early due to pain and urinate right after I am back to 8 to 8.5 even. Pain more above navel and hurts to bad to lay back down, cant fall back asleep. I dont throw up but some light headed and stomach nausea do I sit up in bed for hours. Pain meds and antidepressants dont work for my pain. I am trying to line up a celiac plexus block with a pain mgt doctor. My pain doctor from last year doesnt do those, the thoracic and intercostal didnt help. Trigger pt didnt help. The second block they tried over a year ago in the ilioinguinal and iliohypogastric with steroids helped after a few days and then last for a few days and quit. I think I need nerve ablation. I dont though have any previous injury or surgery to attribute to. Your daughter should look into those lower nerves being pinched, trapped or injured and maybe just needs released. I am at wits end on pain, just even getting a 25% reduction for 4 hours would per day would be OK until better arrived. Its very hard to find a doctor that is familiar with abdominal nerve pain and how to investigate and treat it. Not every pain is a gall bladder or appendix. I saw a plastic surgeon and he didnt think my diastasis from navel to xiphoid had anything to do with it. Scans are clear so you are left with the nerves that mess with the muscles. I can't get my nerves to shut off. What about Ketamine infusions or other IV infusions for pain, not one doctor of mine has brought this up. Oxy and Hydro did nothing for me at the 15-20mg level. I'm not sure nerve pain in the abdomen responds to pain killers or antidepressants. We both need a lot of help because your daughter will have or has depression as its so hard for kids to deal with this. I finally cracked some mentally as I dont want to talk on the phone with many or see many at all. My biggest issue besides pain is now for the last 3 months loss of appetite. I have lost 11% of my total from June. I am not under weight but having a hard time wanting to eat 1500 calories per day. Medical Cannabis so far wont cut it for me or doesnt help much anymore. Kids can't do cannabis or even certain adult drugs so keeping them going emotionally is key, hope you can find a good pain mgt doctor in your area. I have about exhausted my town of St Louis/2mm people. I have a Mayo appt 2nd week Feb in MN but will be hard to survive till then. Chronic pain needs hope or something else to try next to keep you going.

Jump to this post


Replies to "@sawah3 I have chronic abdominal wall pain at a level 8 and 18 hrs per day...."

After many months of horrible suffering from ACNES I found a magnificent surgeon at St Joseph's Medical Center in Phoenix - Dr. Thomas Gillespie is familiar with ACNES. On 9/2/21 he performed Robotic Laparoscopy Surgery on me cutting my T8, T9 and T10 nerves. I left the hospital later in the day CURED of ACNES. Had some soreness from the cutting but that is long gone. He does take on new patients. Let me know if there is anything I can assist you with. Jeffrey Groudan Gilbert, AZ

I suffered horribly from ACNES and finally found an amazing surgeon at St Joseph's Medical Center in Phoenix who performed Robotic Laparoscopic surgery severing my T8, T9 and T10 abdominal nerves. Actual surgery time was 29 minutes and I left the hospital a few hours later TOTALLY pain free.

I suffered for 9 months with ACNES. Dr. Thomas Gillespie of St Joseph's Medical Center in Phoenix performed Robotic Laparoscopic surgery on me 9/2/21 cutting T8, T9 and T10. He is an amazing surgeon and does take new patients. BTW, I left the hospital SAME day CURED. Very easy recovery. No reason to have to suffer anymore. He is the only surgeon that performs this surgery robotically laparoscopically. Good Luck!

It sure sounds like ACNES. Horrible to hear these stories when in fact I suffered terribly from ACNES and by the grace of God found Dr Thomas Gillespie at St Joseph's Medical Center in Phoenix who performed Robotic Laparoscopic surgery cutting my T8,T9 and T10 abdominal nerves. I went home that afternoon completely cured. He is the only doctor who is familiar with ACNES and does surgery the safest way. He does accept new patients.