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Has anyone been diagnosed with Abdominal Wall Pain
Chronic Pain | Last Active: Mar 14 12:16am | Replies (282)Comment receiving replies
@rritam You seem to have some knowledge of ACNES. My 10 year old daughter was recently given this diagnosis after ruling out appendicitis and any GI issues. However, the ultrasound-guided injection meant to block the nerve did nothing for her. Her pain is in the right lower quadrant of her belly and it's constant, but worse when she laughs, stands up from sitting, bends down or if we're driving over bumps. We've taken her to physical therapists and at least one of them is not convinced she has the correct diagnosis. I'm curious what your symptoms were and what your results were with the injections.
Replies to "@rritam You seem to have some knowledge of ACNES. My 10 year old daughter was recently..."
@sawah3 Welcome to Mayo Clinic Connect, a place to give and get support. Your 10-year-daughter was recently given the diagnosis of ACNES and you are looking to connect with members that have experienced ACNES.
Members like @leet3415 @woogie @rritam @fireball59 @jenniferhunter have experience discussing this topic and may be able to help answer your questions.
Below I have linked a previous discussion related to ACNES. You may want to scroll through and read previous posts and suggestions.
- ACNES, Abdominal Cutaneous Nerve Entrapment Syndrome https://connect.mayoclinic.org/discussion/acnes-abdominal-cutaneous-nerve-entrapment-syndrome/
May I ask if you have considered getting a second opinion of a specialist since the physical therapist questioned the diagnosis?
Hi sawah3, I, like so many other suffered terribly from ACNES. Long story short I found an incredible surgeon at St Joseph's Medical Center in Phoenix this past August (2021) who performed Robotic Laparoscopic surgery cutting my T8,T9 and T10 abdominal nerves on 9/2/21. I left the hospital later in the day CURED of this horrible affliction and feel wonderful again. Dr Thomas Gillespie does take new patients. You do have to go through a diagnosis process. He will review out of state patients. If you need more info let me know. Jeff
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@sawah3 i wonder if she could have a psoas strain or tension or scarring. The spinal nerves go through the quadratus lumborum and the psoas as they travel on their paths including to below (some doctors implant stimulators in the psoas for intractable back pain). There are a series of psoas stretches and exercises. These could include things like pikes, “hip flexor stretches” and other “psoas exercises”, etc. There are tons of resources about those exercises online. It might be worth a try (within toleration). Incorporate deep breathing when possible. If you think that sounds silly google a condition called “quadratus lumborum syndrome”. Muscles clamping on nerves can cause pain (that’s just a known example). I had a lot of soft tissue pain and have had good luck with particular exercises and stretches and found various physical therapists helpful, most MD’s and their NSAIDs not too helpful. Good luck.