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Has anyone been diagnosed with Abdominal Wall Pain

Chronic Pain | Last Active: Mar 14 12:16am | Replies (282)

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@rritam

All conservative treatments have failed. Mayo clearly describes the diagnosis and the treatment for A.C.N.E.S. but has repeatedly refused to identify where to obtain treatment for patients like me in severe pain. I quote Dr. Sweetser: "If patients desire treatment, multiple options exist including lidocaine patch application, local injection with local anesthetic with or without corticosteroids, chemical neurolysis, and surgical neurectomy. ... Surgical treatment with neurectomy is available for medically intractable AWF [abdominal wall pain]. ....Surgical neurectomy is an option for medically intractable, severe AWP." The Mayo gastroenterology department has repeatedly denied me information on where to obtain surgical neurectomy EVEN WHILE STATING THAT IT IS AVAILABLE. What is the point of you moderators? I have clearly asked for information on neurectomy ever since I started posting on this site. My severe pain has been ignored, and you keep responding to me with pointless messages in which you keep ignoring my request for information. NEURECTOMY IS PROVEN EFFECTIVE FOR MY (now-chronic) PAIN SYNDROME. WHERE CAN I FIND SOMEONE WHO WILL TREAT MYREFRACTORY A.C.N.E.S. WITH NEURECTOMY?

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Replies to "All conservative treatments have failed. Mayo clearly describes the diagnosis and the treatment for A.C.N.E.S. but..."

Clearly, it is not something that the neurosurgeon wants to do if they won't even take appointments. Or, if they are overcome with people that aren't true surgical candidates, they usually pawn you off on some other physician who isn't an actual surgeon but is trained to figure out which patients actually could benefit from surgery. You really need to go elsewhere if you repeated hit dead ends. I find that it is sometimes more helpful to start out with some different problem and work your way up the chain before stating that you have some rare disorder as physicians will think that you are full of it.