@rritam

I was also turned away by Mayo Clinic but it was the neurology dept. I have Tarlov cysts pushing on numerous nerves in the sacral area. I called and asked if there was a provider that treats them. They told me they have done a few of the surgeries in the past but no longer do them. I also asked if any of the neurologists and/or neurosurgeons would be able to recommend what direction I should go or possibly a referral to another provider that has experience with them. There was no answer for me. I'm not badmouthing Mayo Clinic by any means because I did see Dr. Fealy back in 2003 (before I was diagnosed). He was fantastic and showed initiative in figuring out what was going on but I never got to follow up with him. I was very disappointed to find out that he retired.