@donfeld

I'm so sorry to hear about your pain. I can absolutely relate as I spent many years just labeled a "chronic pain patient" because nobody took the time to think out of the box a little bit. Pain really takes it's toll on a person. You may want to get a hold of the reports from any imaging you've had done over the last few years. Look to see if there are Tarlov cyst(s) noted on there. Take a few minutes to read about them and see if the symptoms compare to the ones you are experiencing. http://www.tarlovcystfoundation.org If there are some noted on your reports bring it to your Dr.'s attention. FYI most Drs know nothing to very little about Tarlov cysts and will tell you that it's not the cause of your pain and they don't cause any issues. If you feel like it's possibly what is causing your pain then move on to a different Dr. That's what most of us who have them have to do. Eventually you will find a couple that are willing to learn a little bit and work with you. It's really best to always request your records to have on had when seeing a new doctor. This includes the discs and reports from all of your imaging. When you go in for imaging just tell the tech. that you would like a report mailed to you and you would like a copy of the disc before you leave. Having your records, and especially having your imaging discs and reports ready for a new Dr. will probably save you some money. Sometimes that won't need to order new tests if you already have your records with you.

Sorry for blabbing on & on. Just trying to offer a little advice. I sure wish I knew about this site years ago. It would have really helped to be able to talk to others experiencing similar symptoms. I've only been a member for about 2 years. Take care and I wish you the best of luck!

Terri