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B-6 vitamin danger!

Neuropathy | Last Active: May 7 12:13pm | Replies (294)

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@airialsmith

I have been diagnosed with vitamin b6 toxicity with four very toxic levels drawn. Not coming from anything I take and I don't take supplements. We can't get the level down no matter what we try. I have electric shocks, numbness, pins and needles and much more. Any suggestions? Thinking about going to the Mayo Clinic and need to know if they can help? I have been to two neurologists / endocrinolgists / general dr.'s / ob-gyn's and had over 200 blood tests drawn. The idea was Hypophosphatasia – but I had a bone scan and completely normal and a detailed dental exam for bone less and completely normal. Any help is greatly appreciated. Thank you!

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Replies to "I have been diagnosed with vitamin b6 toxicity with four very toxic levels drawn. Not coming..."

Hi @airialsmith, welcome to Connect. I know vitamin b6 toxicity can be hard to pin down. I found a website with a lot of good information that may be helpful to you.

Find Out the Real Reason For Vitamin B6 Toxicity
-- https://www.easy-immune-health.com/vitamin-b6-toxicity.html

@airialsmith have you ever been tested for the MTHFR gene? The MTHFR gene is extremely common and can lead to a problem processing the B Vitamins.

Mayo Clinic is very good at diagnosing health issues that are difficult to diagnose. If you would like to seek help from Mayo Clinic, you can contact one of their appointment offices. The contact information for Minnesota, Arizona and Florida can be found here:

Mayo Clinic Contact Information: http://mayocl.in/1mtmR63.

John

Hi, @airialsmith - I would like to join @johnbishop in welcoming you to Mayo Clinic Connect. You may notice that I merged your discussion with an existing discussion titled, "B-6 vitamin danger." I moved it here so you could read through some of the other members' posts on Vitamin B6 toxicity and interact with some of them.

Hoping that members like @gman007 @parus @arnrob @nydiver59 who have talked about Vitamin B6 toxicity will join in to share their experiences and offer any thoughts on the difficulties getting the level down no matter what you try, and dealing with symptoms of electric shocks, numbness, and pins and needles.

I also would echo what @johnbishop said about considering contacting Mayo Clinic about the potential of being seen.

How are you managing your symptoms currently, @airialsmith?

I know this is an old post but I had to drink coffee and water, or coconut water all day every day when I was acutely sick. I also avoided all b6 foods as well (there is an app that will tell you pretty much about the vitamin content of any food). The only studies I could find involve caffeine/coffee as its dilutes the b6 levels quicker. I also personally believe exercise and working your muscles has to help process it out vs laying around sedentary. Got to get the blood and kidneys moving it out! Also I read an article that arabica coffee may help regenerate nerve damage. There is a Wikipedia page on “mega vitamin b syndrome” which is worth the read as there just isn’t much out there. I’ve consulted a neuropharmacologist /biochemists and holistic md’s for advice and it was the neuropharmacologist/biochemist/toxicologist that has the Real knowledge to help us. It was the ND that made me sick and burned the nerves up in my body overdosing me with 6 , so be very careful who you let talk you into putting supplements into your body. I have come to learn that the title of doctor doesn’t mean your an expert and that practicing medicine is exactly that “practice”. Gene testing is a big deal now days and can tell you if you process 6 normally. Also be careful because being deficient in b6 paradoxically presents with the same symptoms as toxicity.