← Return to Stage 4 inoperative squamous NSCLC, now on Opdivo last line Tx

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@goldenretriever

It has been so long since I have responded, or even thought about this site. I'm sorry that I can't report more positive information for everyone. To get to the point, we are now receiving the amazing support of Harbor Hospice in Muskegon Michigan.. We were told there was nothing more to be done for Jim. His Opdivo stopped working and a new tumor has formed in his other lung along with ground glass. Doctor said he is to weak to be in any trials, thus we were referred to Hospice to focus on quality of life. He has been given possibly 6 months. Shortly after this, the took a fall and broke a rib which took its tole on his physical and mental health. So here we are. We are so blessed we have our faith, friends, neighbors, church family, and family's loving help and support. We are facing each day focusing on our blessings, and dealing with new normal the best we can. I wish you continues success with your treatment, and many more days of feeling good. Gods speed my friend.

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Replies to "It has been so long since I have responded, or even thought about this site. I'm..."

@goldenretriever, thank you for returning to the community with your update. While I'm sure this is not the news that you were hoping to tell us, it is comforting to know that you, Jim and your family are being taken care of in hospice care. I say this purposefully since my experience with hospice is that the care there includes the family. One member shared with me that hospice allowed her to be a wife and partner again since hospice took on the role of caregiving. I think that @IndianaScott had a similar experience when his wife entered hospice.

I encourage you to follow the Caregivers group if it might be helpful to you https://connect.mayoclinic.org/group/caregivers/tab/discussions/ In particular this discussion:
- the grieving process https://connect.mayoclinic.org/discussion/the-grieving-process/

I'm sending a virtual shoulder to add to the wide circle of support you have from faith, family and friends.

Hello goldenretriever- I have been thinking about you recently. I am a new mentor and I wanted to share a bit of my experience with you. I had to call in hospice for both my mother and twin sister. They are wonderful and I agree with @Colleen that they also include family in all decisions. I hope that this season is a magical one, surrounded by all your loved ones. If you can please keep us updated. How are you doing?