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← Return to Stage 4 inoperative squamous NSCLC, now on Opdivo last line Tx
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Stage 4 inoperative squamous NSCLC, now on Opdivo last line Tx
Lung Cancer | Last Active: Jun 10, 2019 | Replies (29)Comment receiving replies
I apologize for taking so long to reply. We just spent 4 months in hospitals away from home. Three months were at the amazing Mayo Clinic in Rochester, MN. Life Saving. No one, no doctor, (we saw 12) no nurse, not team member at this amazing healing medical facility told us anyone would die.
After lung cancer surgery I had many people tell me( including my insurance company) I would die!
Mayo Clinic lives up to their very Mission Statement. So my question to you is this:
Where are you being treated ?
I know many stage 4 lung cancer patients who have been given a good quality of life, with proper diagnosis and proper treatment.
Have you given Mayo Clinic an opportunity?
January 11, 2018 I will have survived lung cancer for 10 years...because of proper diagnosis and proper treatment. And to think, for two years
local doctors told me my symptoms were psychological ! Compared to the life saving doctors and their teams at Mayo Clinic. Living is all about
"quality of Life" and Mayo Clinic has certainly given me that.
Let's stay connected.
linda
Replies to "I apologize for taking so long to reply. We just spent 4 months in hospitals away..."
I add my welcome, Goldenretriever. I'm intrigued by your name. Do you have a golden retriever?
It is reassuring to have trust in your cancer care team. Please keep us posted on what you find out this coming week.
In the meantime, you may also be interested in this discussion in the cancer group:
- Talking Frankly about Living with Advanced Cancer https://connect.mayoclinic.org/discussion/talking-frankly-about-living-with-advanced-cancer/
Wow. Can't believe how long it has been since I've visited this site. To answer your question Colleen, we did have a goldenretriever. He was a light colored male named Jake. He lived to be 16 years old, then old age got him. So now, where did I leave off ? I had a very severe lung infection, and thought I was going to die. But it was caught and treated in time. My second chest Xray showed the tumor and the lymph nodes shrinking. The best Christmas gift I could have received. I continue on Opdivo. I'm on my 8th treatment. Continue to feel more sick each day. But not to the point I want to stop the treatment. I am seeing a palautive care doctor. He manages my pain medsl instead of my primary care doctor. But I see my primary care doctor for everything else. Right now, with this 55 degree day here in Michigan, I am getting anxious to get my corvette out of storage, and drive it again, for as long as I feel able. But of course, Winter WILL return. Thanks for your correspondence. Blessings
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Thank you for your response. We have not been to Mayo, however we have complete trust in his oncologist. He works here in Michigan, at the Johnson Cancer Center and also at Spectrum in Grand Rapids. We will see him again next week for another treatment and inquire about other treatments or tests if the Opdivo fails. At this point my quality of life is at a 4 out of 10, 10 being high. I am 73 years old, so taking that in to consideration, I think I'm not doing to bad right now. God willing, I will see Christmas and anything beyond that, we will deal with on a daily basis. I'm buying my dear wife a "forever us" ring for Christmas, and I am asking her, for a 1 year membership to the YMCA. Blessings to you, for a wonderful Christmas Season.