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Replies to "@jay723, here are some resources from reputable institutions that I found: NIH https://rarediseases.info.nih.gov/diseases/6834/kikuchi-disease NORD https://rarediseases.org/rare-diseases/kikuchis-disease/ Orphanet..."
Autoimmune Diseases | Last Active: Dec 12, 2023 | Replies (25)
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@jay723, here are some resources from reputable institutions that I found:
NIH https://rarediseases.info.nih.gov/diseases/6834/kikuchi-disease
NORD https://rarediseases.org/rare-diseases/kikuchis-disease/
Orphanet https://www.orpha.net/consor/cgi-bin/OC_Exp.php?lng=EN&Expert=50918
https://www.ncbi.nlm.nih.gov/books/NBK430830/
You're not crazy. It takes patience and persistence to find a doctor who specializes in rare diseases. Is a second opinion at Mayo Clinic an option for you? Or a major university health center?
Replies to "@jay723, here are some resources from reputable institutions that I found: NIH https://rarediseases.info.nih.gov/diseases/6834/kikuchi-disease NORD https://rarediseases.org/rare-diseases/kikuchis-disease/ Orphanet..."
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I have been trying to get in to see a rheumatologist, but I have Kaiser as my insurance and Kaiser rheumatologists do not see people for fibromyalgia or KFD, I have called several out of network Dr’s and no one can help me. I’m not sure what to do at this point. I live in Colorado Springs and there aren’t any good resources here I’m just at my wits end.