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Replies to "Hello my name is Jenn, back in 2008 I had several swollen lymph nodes in my..."
Autoimmune Diseases | Last Active: Dec 12, 2023 | Replies (25)
Comment receiving replies
Replies to "Hello my name is Jenn, back in 2008 I had several swollen lymph nodes in my..."
@hopeful33250 Sending prayers your way
Hi @jay723, Jenn, welcome to Mayo Clinic Connect. It can be so frustrating to have a rare disease that many doctors are not familiar with. I'm sure @twood412 @jamiekk @gretchenv15 and @dloft know exactly what you mean and have had similar experiences when advocating for care for themselves or their child. I also think @becsbuddy can relate to having an unresolved autoimmune condition and the fatigue and on going effort it requires to get relief.
There have been a few case reports of systemic lupus erythematosus (SLE or lupus) developing several years after recovery from Kikuchi disease. Did the lupus testing prove to be positive for lupus? Jenn have you seen a doctor who specialized in Kikuchi disease?