I’d be happy to. The single most important thing I can mention is that almost 4 years after my KFD diagnosis, I was diagnosed with late stage neuroborelliosis (chronic Lyme and co’s) which my doctors believe to be the cause of my KFD flare 5 years ago.

Hi @twood412,

First, thank you so much for answering John's tag - I'm certain @jamiekk appreciates it too, and we are thrilled to see you return to Connect!

@jamiekk, although these two studies were published in 2006 and 2011 respectively, I thought you might wish to read them:
– Successful treatment of severe Kikuchi's disease with intravenous immunoglobulin:
https://academic.oup.com/rheumatology/article/45/2/235/2899313
– Management of Kikuchi-Fujimoto Disease Using Glucocorticoid:
https://www.hindawi.com/journals/crim/2011/230840/
Jamie, you mentioned, "...the Drs he has seen it’s the first time they have heard of it." Have you thought about seeking a second opinion?