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Occular Myasthenia gravis (MG)

Autoimmune Diseases | Last Active: Oct 25, 2021 | Replies (47)
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@750scar78

I'll have to ask my doctor about the Mestinon your on. I've only taken a couple days of these two drugs and so far, don't mind the side effects......but one of them gives me the runs in the early morning after breakfast. As for the water exercise I do, they're not very aggressive. My husband goes in with me, and we do them together. I've used a cane for a year now because of my wobbly legs and imbalance problems. At least with this diagnosis, I now know why my body does these things. I've been giving myself permission to take a nap every day for a couple years too. I nap for a couple hours in the afternoon and that gets me through the evening hours.

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Replies to "I'll have to ask my doctor about the Mestinon your on. I've only taken a couple..."
mylife | @mylife | Feb 14, 2018

Hi, Mestinon is Pyridostigmine, that's what you are on, just wondering why you have been put on two drugs at the beginning of your therapy? Perhaps it's because your reading was so high. I'm so glad you are enjoying you pool exercises, I was doing them before I was diagnosed with MG because I had my 2nd lower back surgery last July. With not being able to drive until recently I have been unable to go. My Husband passed it will be 3 yrs in May. It's hard on ones own. However I will start again now I have started to drive again. I am determined to have my overseas holiday to the UK next year as I do my Ancestry. Keeping up with that is keeping my mind active. My appt. at the Muscle clinic is still on the 26 th of this month. How long before you got your results? Cheers

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