Hi Chorba, may I ask how old you are ? I am 80 and if u are young I feel bad for u going through that. I'm not nor have been that bad. Have you been on the 3 meds since you were diagnosed? I am only on 60mg x3 daily of mestinon . The Specialist says the higher t he dosage is may cause me to have worse and more side effects. My MG only started in Sept last year so it's early days for me yet. I live in NZ and we don.t get many MG cases here. About 1 in 200.000 apparently. I am able to cope daily if I wait until the Med has been taken 1 hour however I started to drive again 3 days ago and I've over done it so have learnt my lesson, if I need to go in the car do only a 1 hour then home. I don't live more than 10 mins from town. I think we do have to learn just how much we are able to do then rest which is so important with MG. take care, chin up. Cheers Marg.

I have tried to find the drug Metophenolate you mention and cannot find that drug .have u mis spelt the word? Also what Steroid are you on? Cheers.Marg.

I am 52yrs old, thank you for your reply, also just received hospital app today for test at swallowing clinic on Tues, will see how it goes. Take care.

Hi yes mispelt it is myclopholate, 15mg prednisolone. Also 90mgx4 daily mestinon.