@chorba Hi, there. I have a sister with Lupus, and another with MM and one with Crohn's, and I have hATTRwt. These things just seem to keep going, no matter what I do to try to stop them. The best thing I have done is start methotrexate injected. But anyway, my hATTRwt has spread all over my body, and I just keep getting a little worse. The symptoms and signs just seem to keep slowly adding to themselves. My dementia is growing, and my GFR and other signs are showing that the disorder is progressing, but slowly. Anyway, just know you are not alone. old karl https://bit.Ly/1w7j4j8

Hi all, I had my chest x-ray last week and I don't have to worry about my Thymus gland....it's not enlarged. I've been taking meds for almost 3 weeks now and my eyes are better. The drooping is almost gone and the distorted vision is better, but still not great. So far, I do not have trouble swallowing, but do have some trouble chewing hard things. My biggest problem is the head drooping forward. My neck muscles are weakened and don't seem to be getting better. The doctor keeps telling me to be more patient as it takes 4 to 6 weeks for the meds to really kick in. I'm having a blood test next week to see if there is an improvement in whatever those little thingies are that are causing a problem. My meds. are Pyridostigmine 60mg 2 times a day, and Azathioprine 50mg 2 times a day. Anyone else taking these?