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Occular Myasthenia gravis (MG)

Autoimmune Diseases | Last Active: Oct 25, 2021 | Replies (47)

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@mylife

Hi Jolander
Are your only symptoms your eyes, that you say you have Occular Myasthenia gravis

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Replies to "Hi Jolander Are your only symptoms your eyes, that you say you have Occular Myasthenia gravis"

It started as only eye & maybe a little weakness & tired.I hade one crisis about 2 yrs ago after a cold. took Prredisone for 9 mos and was doing good till Nov2017. Lot of stress at that time & now I have blurred vision, my eyes get tired & hard to read. some neck & shoulder stiffness. Starting next week on IVIG to see if that helps.

Hi Jolander, did u read my initial info. Dec.31st.? My problems started with a droopy eyelid then double vision both eyes then even before I started on Meds. Double vision moved to when I looked right and left but not straight ahead unless I was lying on my bed reading or watching TVs then I saw 2 of everything. What I would do is shut one eye alternately if one got tired..

Hi @mylife, this sounds exactly the way mine began. It was in Dec. 2016 that the double vision started. What is really strange about all this, is that my husband had the double vision about a week before me! His cleared up in a couple of weeks, while mine took about a month. We both went to our eye doctor but he couldn't figure out what the problem was. Mine occurred again two more times...again the eye doctor couldn't say what was causing it. Then in Nov. 2017 the drooping eyelids began along with the vision problems. I went to my GP who thought it might be 6th or 7th nerve palsy, but wanted me to see a neurologist for further examine. After the nerve/muscle test and the blood test, he diagnosed me with MG and I just started the pills. My right eye has been good for a couple of weeks, and my left eye is coming along too. Hopefully now that I'm on these pills, my neck/head drooping and pain will subside too.