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Occular Myasthenia gravis (MG)

Autoimmune Diseases | Last Active: Oct 25, 2021 | Replies (47)

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@mylife

Hi, I was diagnosed with MG November 29 2017 also have double vision looking left and right. However have been unable to see a Neurogical Specialist as we don't have one at our Hospital only one who comes over from another town once a month.
I was diagnosed by a blood test and right away put into Hospital on a Heart monitor and started on Pyridostigmine bromide 30 mg. twice a day, then three times daily, then 60 mg. twice daily. Then 60 mg three times daily, over one week. My Heart rate did not go slower over that period.
I was sent home where I have some occasional bouts of abdominal pain and diarrhoea, hot flushes and sweats,excess saliva, nausea that I find Ginger tabs help. I get breathless when I excert myself, such as showering or doing housework.
I am 80 years old, and very surprised I have got MG at my age as I understand it women aged between 20 - 40 yrs is usually the case.
I also read that having double vision within 2yrs previously of MG being diagnosed can often be the case.
I am a retired Registered Nurse and took notice of my symptoms at an early stage otherwise I might not have seen my Doctor so early on.
Also my Doctor knows that I don't make a habit of seeing her unless I'm pretty sure there is something wrong with me.
My symptoms were : droopy eyelid, double vision, difficulty swallowing. This all stared in September the week before my 80 th Birthday and the droopy right eye and from then on things got worse. And my Dr. Sent me to an Endocrinologist as he was the only person at our Hospital I could see it was he who sent me for the blood test even though he didn't think I had MG. He tested my limbs and said they were too strong. However here I am at my stage in life. I think it could be all the stress I have been through over the last few years. Who knows?.?

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Replies to "Hi, I was diagnosed with MG November 29 2017 also have double vision looking left and..."

Hi @mylife -- I see this is your first post. I would like to welcome you to Mayo Connect. Teresa's (@hopeful33250) post just before your post has some good information that you may want to read if you did not see it. Also, we have a few discussions about myasthenia graves (MG) which you may wish to view:
– Myasthenia Gravis* https://connect.mayoclinic.org/discussion/hi-everyone-let-me-begin-by-telling-you-some-of-my-story/
– Myasthenia Gravis https://connect.mayoclinic.org/discussion/myasthenia-gravis-2b0f14/
– Body Builder Regains Energy After Surgery for Myasthenia Gravis https://connect.mayoclinic.org/newsfeed-post/body-builder-regains-energy-after-surgery-for-myasthenia-gravis-1/

I’m also tagging @kanaazpereira @gretagean @socalgal @iggeez1416 @whtwater @bea2377 @sunshine56 @saur1994 @dschmidt @lynnes, who have talked about MG on Connect and can share experiences with you.

@mylife, you mentioned you think it could be stress. I have no medical training or knowledge but I do think stress can play a major part in autoimmune diseases. I listened to a speaker last year, Dr. Amit Sood, who gave a really great talk about resilient living. His website - http://stressfree.org/ has some really good short videos which you may find helpful.

Hoping you find some answers soon.

John