← Return to Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

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@emmiel14

Hi Theresa,
Thank you for reaching out. Wow. So much has happened. Dr. Stuckey did my surgery Aug 12, removing 12" of small intestine, which contained 13 grain of sand-sized NETs. Two of 22 lymph nodes were positive for mets. I had no pain at all after the surgery! No sepsis, no c-diff. Went home Aug 17. Doing okay at first, then loss of appetite and fatigue.
On Aug 28 I had doubled over severe lower abd pain and went to a Tucson ER. They air-lifted me to Mayo Phoenix, admitted for severe colitis and two abscesses. Placed on bowel rest with infused nutrients for 5 days. Two drains, on of which was removed before I came home Sept 4. I return to May this Tues for another CT, removal of drain. labs and visit with Dr. Stuckey.
It has been a very long haul! Some days are better than others & I find myself getting somewhat impatient to feel better. Everyone says my body has been through a LOT, so I believe them.
Thanks again!

Emmie14

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Replies to "Hi Theresa, Thank you for reaching out. Wow. So much has happened. Dr. Stuckey did my..."

@emmiel14 Hi Emmie

I do appreciate your update. You have been through a lot since August and you do need to give yourself time to recover from the Aug. 12 surgery and Aug. 28 problems. Will you have to have any follow up treatment for the NETs (like monthly shots, etc.)?

How are you doing with eating and nutrition? Are you able to eat most foods comfortably?

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