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Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Neuroendocrine Tumors (NETs) | Last Active: Mar 26, 2023 | Replies (66)
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@emmiel14

Yesterday I saw an oncologist here in Tucson. His thought was that the primary tumor is in the small intestines but it did not show up in the PET. This matches the path report as "...consistent with primary small intestinal carcinoid tumor." He said "I can just leave it (the 3cm mesentery mass) there since it is very slow growing." I have an appointment with Dr. Chee Chee Stucky on Jul 1. Eager to see what she says....

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Teresa, Volunteer Mentor | @hopeful33250 | Jun 28, 2019

Hello @emmiel14

I'm so glad for the update! The wait and see approach seems to be done a lot these days for NETs as they are very slow growing. Given your history of C-Diff I'm sure that you were pleased as well.

I did a little research on Dr. Stucky and she appears to be very well-trained. Here is a link to her bio, https://www.mayoclinic.org/biographies/stucky-chee-chee-h-m-d/bio-20163956

Will you post again after your appointment on July 1? I'll be looking forward to hearing how your appointment goes. Wishing you well!

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