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Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Neuroendocrine Tumors (NETs) | Last Active: Mar 26, 2023 | Replies (66)
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@hopeful33250

Hello @emmiel14 and welcome to Mayo Connect,

I am pleased that your doctor was able to get approval for the PET, that helped arrive at a diagnosis. It sounds as if you have been dealing with a lot of health problems since October 2018.

Will your oncologist be making the decision on the type of treatment you will have? Does surgery seem to be the first course of action at this point?

I'm looking forward to hearing from you after your appointment next week. Will you provide an update?

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Replies to "Hello @emmiel14 and welcome to Mayo Connect, I am pleased that your doctor was able to..."
emmiel14 | @emmiel14 | Jun 21, 2019

My general surgeon, who got the PET approved, said it "has to come out." I am being referred to an oncologist and surgeon through the U of AZ. My problem is that I am very prone to C-diff and seem to have all of these odd side effects after procedures. I am more afraid of the surgery than the cancer. I will know more after the 27th June and keep you informed.

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