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@hopeful33250

@ronregency, Hi Ron

Thanks for sharing here on Connect and especially with @titansmistress. As you are comfortable doing so, would you share a bit about your history with this disorder: For example: How long ago was your surgery? How you are doing post-surgery? Have you had some of the same symptoms?

All of us with NETs appreciate the sharing of others with this rare disorder. I look forward to getting to know you better.

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Replies to "@ronregency, Hi Ron Thanks for sharing here on Connect and especially with @titansmistress. As you are..."

I was officially diagnosed one week ago with a core needle biopsy. I had a colon resection for a large polyp in Oct 2018. Post surgery I had sepsis and pneumonia. During my recovery from that, I had lower right abdominal pain and had a CT. Nothing showed up in the LR abd, but there was a 3cm mass in the midline mesentery. My surgeon ordered a PET but it was denied by insurance. Meanwhile I had symptoms of IBS. Five months later, and after four attempts to get the PET, my surgeon called the medical director at the insurance company and the PET was approved. The mass lit up, leading to the core biopsy. No I wait to see the oncologist next week...