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DiscussionAnyone treated for NETs at Mayo Clinic in Jacksonville, FL
Neuroendocrine Tumors (NETs) | Last Active: Mar 26, 2023 | Replies (66)Comment receiving replies
Replies to "I appreciate your sharing more of your health history, @patriciagsr. You certainly do have complex health..."
Hello @hopeful33250. My left vocal cord was paralizad after the big surgery (they told me this happens many time when they intube you for anesthesia), now it is not only paralized but has collapsed. Just had fat Inyected and they hace recommend to do what you have done in the near future. Did you have good results ? How was the surgery ? Any side effects except not able to talk for a week or so ? One of my problems is that a have so much flems and saliva that trying to eat is complicated. I end up spitting almost everything I eat but I keep doing with my therapist so my muscles get practice.
My horner’s Syndrome is also from the surgery. For that I have orofacial therapy every day and my eye is much better. Apparently this makes the side affected I your face dry and that can affect the cornea. Will still have my appointment with the specialist in August. This was also because if the surgery.
I have lost lots of weight but now I am in my limit, can’t loose more. I am changing nutritionist next week. I was on Isosource 1,5 with fiber for 5 months and it was hell for me. Continues nausea and vomits. I month ago I switched to a blend diet at home and it is much much better. I feel better and with much more energy. My diet has everything plus supplements. I do recommend that strongly, eat food not supplements.
Hope this helps 🙂