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@titansmistress

I had the PNET-pancreatic tail/spleen removed Jan 2018 then a very large post-op fluid collection removed July 2018. I'm struggling mentally & physically with persistent symptoms. Abdominal and back pain, freq. urination, freq. thirst, dehydration, loss of appetite, whole body aches w/burning, night sweats, fatigue, weakness, ringing in my ears. Sometimes nausea, headache, insomnia, indigestion, sore throat, sinuses run or stuffed up. I feel like I'm stuck in a bad nightmare. I do everything I can to eat well, stay hydrated, stay on a sleep schedule etc...but it doesn't matter what I do the problem symptoms persist to the point that I'm very depressed. I even took Elavil for months. It helped my mood but I experienced side effects and I discontinued. I'm so frustrated with my health & doctors.

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Replies to "I had the PNET-pancreatic tail/spleen removed Jan 2018 then a very large post-op fluid collection removed..."

@titansmistress

I'm so sorry to hear of the post-surgery problems you have had. I can imagine that you would feel depressed with so many physical difficulties going on. Since you discontinued the Elavil, have you tried another anti-depressant that might help with your depression?

I'm wondering how the results of your follow up blood work are going. Have you had those levels checked lately?
Does your NET doctor offer you any suggestions for dealing with the symptoms you have?