← Return to Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

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@hopeful33250

I'm so glad that you posted again, @titansmistress. It sounds like you have had quite an experience of surgery and post-op problems. I'm glad that you are well enough to Connect with us again. Please feel free to share some of your experiences as you are comfortable doing so. I'm looking forward to getting to know you better.

How are you feeling now? What type of surgery did you have? Has there been any monthly injection treatments since your surgery?

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Replies to "I'm so glad that you posted again, @titansmistress. It sounds like you have had quite an..."

I had the PNET-pancreatic tail/spleen removed Jan 2018 then a very large post-op fluid collection removed July 2018. I'm struggling mentally & physically with persistent symptoms. Abdominal and back pain, freq. urination, freq. thirst, dehydration, loss of appetite, whole body aches w/burning, night sweats, fatigue, weakness, ringing in my ears. Sometimes nausea, headache, insomnia, indigestion, sore throat, sinuses run or stuffed up. I feel like I'm stuck in a bad nightmare. I do everything I can to eat well, stay hydrated, stay on a sleep schedule etc...but it doesn't matter what I do the problem symptoms persist to the point that I'm very depressed. I even took Elavil for months. It helped my mood but I experienced side effects and I discontinued. I'm so frustrated with my health & doctors.