← Return to Anyone treated for NETs at Mayo Clinic in Jacksonville, FL
DiscussionAnyone treated for NETs at Mayo Clinic in Jacksonville, FL
Neuroendocrine Tumors (NETs) | Last Active: Mar 26, 2023 | Replies (66)Comment receiving replies
Replies to "I'm so glad that you posted again, @titansmistress. It sounds like you have had quite an..."
I had the PNET-pancreatic tail/spleen removed Jan 2018 then a very large post-op fluid collection removed July 2018. I'm struggling mentally & physically with persistent symptoms. Abdominal and back pain, freq. urination, freq. thirst, dehydration, loss of appetite, whole body aches w/burning, night sweats, fatigue, weakness, ringing in my ears. Sometimes nausea, headache, insomnia, indigestion, sore throat, sinuses run or stuffed up. I feel like I'm stuck in a bad nightmare. I do everything I can to eat well, stay hydrated, stay on a sleep schedule etc...but it doesn't matter what I do the problem symptoms persist to the point that I'm very depressed. I even took Elavil for months. It helped my mood but I experienced side effects and I discontinued. I'm so frustrated with my health & doctors.