As Volunteer Mentor, Teresa mentioned, my wife has been seen at Mayo, Rochester for her NETs for 2 1-2 years with surgery in 2015 and Dec 2016. She sees Dr. Halfdanarson in Rochester. She also interfaced with Dr. Halfdanarson's Reserch Fellow Pashtoon Kasi who is now at Jacksonville - http://www.mayoclinic.org/biographies/kasi-pashtoon-m-m-d/bio-20247238. We enjoyed seeing him along with Dr. Hafldanarson. He certainly has a great deal of resources to draw on should he have questions. You'll see he has an 'interest' in NETs.