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Need to find out what's wrong with me
Autoimmune Diseases | Last Active: Oct 16, 2022 | Replies (34)Comment receiving replies
I have taken Clonazepam 1mg (Klonopin) for 13 years, at bedtime, for anxiety. I have idiopathic peripheral neuropathy, both small fiber neuropathy and autonomic neuropathy, for which I've been attempting to treat for several years. I had a spinal cord stimulator implant in June, which has reduced the burning pain in my feet.
Some of the symptoms you described are similar to those of autonomic neuropathy. I suppose that you or your doctors have considered that possibility.
I wish that I lived close to a Mayo Clinic. I think they would quite possibly figure out what's really going on with my health in a short period of time. Instead, I've moved at a snail's pace to learn that I don't have a lot of diseases, from a parade of specialists over the course of ten years. But, Oregon is a long way from any of their clinics.
I hope that you find solutions soon. It's not easy to live for years with symptoms such as yours. May you find good health in 2018.
Jim
Replies to "@jeffrow I have taken Clonazepam 1mg (Klonopin) for 13 years, at bedtime, for anxiety. I have..."
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@ jimhd So now a neurologist did a ANSAR test and told me I have advanced autonomic neuropathy. Now I am going to do a gastro-emptying test on Thursday, which I think will show that I have gastroparesis. I have diabetes, but now unmediated because they say it's under control. I keep getting the run around. It's too much. I wanted to ask how you manage your autonomic neuropathy. I will add I did not trust this neurologist today and put a call in to a friend whose husband is one and I am hopeful that I can get more comprehensive testing and insight from him.