← Return to If you're living without a hip like me, please reach out to me.....

Discussion
Comment receiving replies
@brenda02

I can relate to a lot of your issues. My friends can’t believe how well I am coping with all the stress, but attitude is everything for healing.
I’m very fortunate as my husband has been helping me immensely. One of my options is to have the hip removed completely like you.
Do you spend all of your time in a wheelchair? Can you put any weight on your hip less leg? Like transferring to the toilet or shower?
I feel I can live like I am currently if only they could stop the leaking. No one has any answers for me.

Jump to this post


Replies to "I can relate to a lot of your issues. My friends can’t believe how well I..."

I have a good humourous attitude. I'm adapting my life based on my strength level for the day. I cannot walk with my walker too far so I use my wheelchair as needed. I use ice and heat for pain. Tylenol doesn't help pain. I do run random fevers. These have not been identified with any specific reason. I have had a surgery that replaced the spacer but it's experimental. It appears it's not going to be a long term solution. I was told it needs to be taken out. This means there will be zero hip again. I'm not using any antibiotics because when I really need an antibiotic I want it to work. Advil or Alieve are my occasional used medications for pain. I cannot be on them for long periods of time because I am in stage three kidney failure. My surgeon took a major chance with me. I had no hip then the first spacer. The antibiotics didn't work. Second surgery and a new spacer and twelve weeks IV antibiotics then time to heal. The third surgery by this surgeon, he designed a femur, ball, and Teflon coated pelvic hip. This is now the troubled area because it swells. They do aspirations on a regular basis but I was told it has to come out. Twelve weeks of IV antibiotics and no more hip again.
In total this will be my seventh hip surgery not including the numerous debridement. I've been through three partial hip surgeries and three THR and one custom designed THR with a total femur replacement. I'm trying not to have this removed. It's not just the hip I'll lose but my femur too.

I need positive methods to manage. Tips on how one bathes, dresses, sleep, walk, etc. Please let me know if you have any specific assisting mechanisms. Thank you.