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I have been taking the Big 3 for just over a week. The end of the first week I started to get very severe muscle aching the day after the medications. He had me retry just to make sure and it happened again. I think now I have to start over with one drug at a time but I think they are thinking it is Rifabutin that apparently can cause flulike symptoms. Has anyone had to slowly start back up on it and be able to tolerate it over time? I am already discouraged. I want my treatment to work and I don't want my Doctors thinking I am a complainer. Does anyone see MD at Mayo in Rochester. I am going to try for an apt there but I know it will be out or Network for insurance.
Replies to "I have been taking the Big 3 for just over a week. The end of the..."
I saw Dr Moua at the Mayo of Minn.
Dr Aksamit is the best and may be worth waiting to see him.
I just went in myself for a second opinion and didn't get the whole work up.
My Infectiouse disease Doctor here said she would follow Dr Moua's recommendation here in Minneapolis. My ID is in 20 minutes from me versus hour and half drive to Rochester.
How far are you from the Mayo?
With my case I was suppose to start out with IV's.
It sounded like a easier option to have my Dr here follow the Mayo's recommendations.
Shari
Hope this helps
Thanks for this post. My doc wanted to give me something that could cause death!!! I refused to take. Now she is trying to have me take 2 antibiotics that can cause abnormal heartbeats... not doing that either...
Don't dispair, I have complained too. The docs don't have to go thru these side effects, but you do. So keep complaining, it's your health and peace of mind....
Oh my gosh, which ones are they?
Thank you, It sounds like they may switch rifabutin to rifampin and see how that goes. I hope that one is tolerable.
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@jkiemen Jo Ann, I had flu-like symptoms from Rifampin and was taken off it. Later I tried Rifabutin which I tolerated fine so that was added. Don't worry about what your doctor thinks of you. The side effects are real and they are not always something to be powered through. They should not be ignored. While these meds are attacking the infection they can also attack the good things in your body. It's a form of chemotherapy.