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Have to start the big three

MAC & Bronchiectasis | Last Active: Jan 26, 2018 | Replies (97)

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@jkiemen

Thank you. I had my baseline eye exam today, pick up the meds tomorrow and then I guess I will start them. I will pick up the ginger lollies. Where did you find them?

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Replies to "Thank you. I had my baseline eye exam today, pick up the meds tomorrow and then..."

Hi @jkiemen I got them from the chemist and online but I live in NZ.

I will look online for them and get some ginger tea

@jkiemen, I am sorry to hear that you have advanced to needing the BIG 3 antibiotics. Many who have travelled this road before you have suggested that you start out by taking one med alone for the first week, then introduce the second med along with it the next, and so on. That way; in the event your body cannot tolerate it, you can pinpoint exactly which one is not agreeing with you. There is also times of the day and around meals that affect how well you can tolerate the meds. I used to have the schedule that worked for our previos Mentor, @kateman, that had successfully scheduled her meds to where she could tolerate them. I am sure someone has a link to that thread. I have a brand new computer and am losing my AOL, so I do not have access to my old saved file cabinet. I will try to recover them for you. But, hopefully others here will post them. Wishing you the best, Terri

@windwalker , @jkiemen - Here is what I have from Katherine. Keep in mind, she was taking meds for other things as well as MAC so weed out what doesn't apply.

**the probiotics should not be taken for at least two hours after you take the antibiotics
SCHEDULE FOR MEDS AND VITAMINS November 2011
1. Wake up: take probiotic, Aciphex & Synthroid on empty stomach
(Aciphex-at least 1/2 hour before eating-1 hour after. Separate Probiotic from antibiotic by at least 2 hours!)
2. Wait 30 minutes: Eat breakfast .. .. take regular a.m. meds & vitamins
3. 1 puff Qvar .. rinse mouth well .. brush teeth.(SET 5 CELL PHONE ALARMS!!).
4. ONE hour later take Homeopathic remedy after nothing in mouth for one hour
5. AT LEAST THREE hours later .. take Rifampin on empty stomach.
(Rifampin 1 hour before or 2 hours after a meal with a full glass of water- 4 hour after vitamins)
*( IF POSSIBLE TAKE 2nd PROBIOTIC 2 hours after Rifampin)
6. AT LEAST ONE hour later.. take antiobiotics except Rifampin with a snack.
*OR 2 hours after Ripampin IF TOOK 2nd PROBIOTIC* (Avelox-4 hours after or 8 hour before multi vitamin with a full glass of water)
7. Six hours to Seven hours later take regular p.m. meds (Crestor &Evista) & multi vitamin & Nioxin (zinc)
after evening meal or snack. At least 2hrs (before or after) calcium, magnesium,iron or zinc.
8. Eight hours later take 2nd probiotics on empty stomach. **probiotics must be taken at least two hours after you take antibiotics
9. Nebulize Amikacin. Take nebulizer apart, clean in hot soapy water & sterilize nebulizer!
AVERAGE AMIKACIN SCHEDULE BETWEEN DAY TO DAY-try to stay same every day within 4 hours .. at least within a 12 hour period!
10. Before going to bed: take Homeopathic remedy after nothing in mouth for an hour. (as needed)
11. 1 puff Qvar .. rinse mouth well .. brush teeth.
++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++

NOTES ON TAKING ANTIBIOTICS
Wake up am probiotic on empty stomach
Ripampin 1 hour before or 2 hours after a meal with a full glass of water- 4 hour before vitamins
Ethambutol and Avelox (sleep disturbance) with Azithromycin: after breakfast with a full glass of water
8 hour before or 4 hours after multi vitamin
Bedtime: take regular p.m. meds & multi vitamin, Evista, Lipitor and pm probiotic.
Separate multi vitamin & probiotics from antibiotics by at least 4 hours if possible)

BUT RECENTLY I FOUND the below.. if I had it to do over again I think I might simplify it and JUST do this one probiotic daily and see if I could get by with just the one .. see what happened. BECAUSE it has 50 Billion PLUS it has 10 different probiotic strains .. ALL in just ONE probiotic pill! Now it does have to be refrigerated .. but I think it is going to be worth it. Even though I am not on antibiotics at this time .. I still take a daily probiotic for basic health .. this is the one I am now taking.
NOW Foods Probiotic-10,
(50 Billion, 50 Vcaps Healthy Intestinal Flora*, KEEP REFRIGERATED TO MAINTAIN POTENCY 10 Probiotic Strains, Dairy, Wheat & Gluten Free - Vegetarian/Vegan Formula) http://www.amazon.com/NOW-Foods-Probiotic-10-Billion-Vcaps/dp/B0031RJXCK/ref=sr_1_2_a_it?ie=UTF8&qid=1465156239&sr=8-2&keywords=probiotics+50+billion

Thank you I better check out the probiotic strains but I will try for one that is a refrigerated one

@jkiemen, Hi. I just edited my initial response to you because I left out some key elements about introducing your meds one week at a time. How are you doing so far?

I am picking them up today because they had to get enough in stock at the pharmacy.

@lindam272 , Thank you for posting this, I was just about to myself. @jkiemen , the one antibiotic that seems to be the hardest on the stomach is the rifampin. Please take extra note from that list; to take it on an empty stomach.